Check out our list of resources below.
National Organization for Rare Disorders: https://rarediseases.org/
Global Genes: https://globalgenes.org/
Undiagnosed Disease Network: https://www.vumc.org/undiagnosed/
Rare University: https://rareuniversity.com/
Rare Action Network: https://rareaction.org/
Rare Disease Day: https://www.rarediseaseday.org/
NIH Rare Disease Clinical Research Network: https://www.rarediseasesnetwork.org/
Every Life Foundation for Rare Diseases: https://everylifefoundation.org/
Rare Disease Legislative Advocates: https://rareadvocates.org/
NIH Genetic and Rare Disease Information Center: https://rarediseases.info.nih.gov/
The Tennessee Genetic Counselors Association: https://www.tngeneticcounselors.org/